Slow Progress Assessing Potential IIH Diagnosis

I finally had my appointment with my local neurologist this week to discuss whether he agreed to assess me for idiopathic intracranial hypertension (IIH). It went okay but wasn’t quite what I’d hoped it would be.

He agreed that it made perfect sense to try to rule this condition in or out and that head pain associated with IIH and migraine pain can be very similar. But we disagreed about the appropriate next step.

Instead of scheduling a lumbar puncture right away, he preferred to refer me to an ophthalmologist to get an assessment of my optic nerves, determine whether there is any swelling and how bad any swelling the doctor identifies might be.

Luckily the neuro’s staff was able to get me an appointment with the ophthalmologist clinic they recommend in less than a week. So even though I was disappointed that we’re not going ahead with the lumbar puncture, at least I don’t have to wait long for the eye exam he wants me to have. He also agreed that the only way to diagnose IIH is with a lumbar puncture, and I find that reassuring. That’s the most current wisdom about this condition, but some doctors aren’t as up to date as they should be about that kind of thing.

So my journey continues, but at least we’re starting to make some progress.

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DISCLAIMER: Nothing on this site constitutes medical or legal advice. I am a patient who is engaged and educated and enjoys sharing my experiences and news about migraines, pain, and depression. Please consult your own health care providers for advice on your unique situation.